Spare A Pint?
We’re sitting on the bed at home, just vegging together. I’m happy to be next to my boy. We’re praying for a lot more time to sit here together. I’m also happy about all the awesome comments people have been posting! I read the comments to Bryce every night, which brings him joy, laughter and peace. If you're reading this, drop Bryce a message. If you're one of the boys from back in the day, feel free to embarrass him. He loves it! (I’d like more of a shout-out from Arapeen Drive and Troy Circle, because I do miss you guys—you’re my second family! Bryce loves to hear from his Bintz family also, so type away!)
Dani was banished from the house yesterday. She has been leaking fluid from her face as a result of her teething, but yesterday the coughing and sneezing began. Great. All Bryce needs is a fatal case of pneumonia, right? My beautiful sister Holly jumped in and took Dani until she is better. I miss that baby!! This brings me to my urgent plea: If you’re sick, or thinking about getting sick, or your neighbor’s dog is sick, PLEASE visit with us via telephone. Our home is always open to visitors, but not the lethal kind.
How sweet is this—Brady, Bryce’s younger brother, has been sleeping on our couch every night. He and I have both been dealing with severe insomnia, yet our minds are at ease when we can be around Bryce. I haven’t wanted to use any sleep aids because I want to be ON in case Bryce needs me. I’m also still on call for work 24/7 for questions and screening, which requires me to be instantly alert (or at least sound alert). Having Brady downstairs has relaxed us both considerably, so my need to sit up and stare at Bryce all night has diminished a bit. Brady sleeps a lot better also. I’d say “Little B” and I are now sleeping about four hours a night, plus or minus two hours. Not bad!! We love you, Brady!
Bryce is well into week two of his Nexavar/Temodar treatment. This is the drug combination he would have received in Las Vegas, but that treatment wouldn’t have started until September 24th, to ensure an untainted guinea pig. We don’t have time to be rodents, so we found someone who would hook us up here in Salt Lake. Ahh, Dr. Isotope—we love him! Bryce’s dose of Nexavar was doubled today, so we’re going full steam ahead. Today was also day three of radiation. The stupid tumor around Bryce’s heart has snaked an arm around the back of the heart and paralyzed his phrenic nerve, thereby deflating his right lung. Dr. I is hitting the heart and nerve with radiation, hoping to reanimate the diaphragm. He will have an MRI of his brain tomorrow. Let’s pray for good news! After Bryce’s blood transfusion last week, wisely prescribed by Dr. Isotope, Bryce looked and felt a lot better. His pale skin sprung to life and his energy level increased markedly. However, since his bone marrow isn’t healthy, he can’t produce blood very well, and he is now pale and weak again. He still looks better than he did a week ago. We have no idea how well these drugs are working, but we’ll give it some time before getting too restless. Bryce is alive, and we’re happy about that. He’s beating so many odds.
I will now shamelessly and emphatically implore all of you to please DONATE BLOOD! Bryce has had the equivalent of 12 donated units, which has saved his life thus far. That means 12 people have given my husband some more time to play with his baby daughter, kill cancer, and touch so many lives today. The longer Bryce fights this, the closer we are to a miracle and a cure. I would love to see blood drives on Bryce’s behalf, as that is something we ALL can do!! (Mikey, you’re good at that!) My sister Steffani donated yesterday, as you can see by the picture above. She’s sporting the coveted “WE’RE KILLING CANCER” wristband I designed. (And she’s gorgeous—can you believe she’s the mother of twin toddlers?!)
Since ALL of us are praying, please add our dear friend Christine to your prayers. Her melasuckanoma has returned and is giving her a beating. She is a wonderful, caring, generous, single mother of two little boys. She parted with her lucky coin; the coin that saw her through countless treatments and surgeries, and sent it to Bryce for luck. Bryce was a stranger at that point. She has had her church group praying fervently, and they have sent Bryce a prayer blanket. Christine and her babies need a miracle. Also, please pray for another dear friend, Keith. Keith is a daddy who is fighting this disease for all he’s worth. He and his wonderful wife Suzan were also strangers, and Suzan sent Bryce a beautiful prayer blanket from their congregation in Georgia. Where do we stop naming these strong people? Tara, Brian and Jenni...you know what? People are GOOD. If any of you are interested in seeing how awesome people are, check out this site. These are all melanoma warriors—all GREAT people! (Elaine—I have seen you there!! You are the BEST!)
From Bryce:
Thank you all for the support. I never imagined how powerful the love and prayers from friends and strangers could be. My goal every day is to stay positive and keep praying for that miracle. I KNOW we can achieve it! I still wish I were going to the MFFB golf tournament tomorrow morning. :( <
We love you all!
39 Comments So Far!
Tammy,
Weren't we blood buddies back in college? I haven't donated in years. I've been pregnant or nursing (still need more info on the last one). I'll have to look into it and see what I can do. Some people are a afraid of the big needle, but I say get over it. It's not a big deal and if it means giving Bryce even an extra hour, then it's worth it. Besides, they give you oj and Oreos. You know that's the real reason I ever went. I love Oreos.
I'm thinking of you all day everyday with a constant prayer in my heart.
Nikki
Dear Bryce & Tammy:
I have posted before. I found your site thru MPIP. I too have Melanoma but am told I am NED now. But we all know - It is a sneaky, nasty disease.
I just again wanted to let you know that so many, many people care about you and your family and pray for you every day. I don't know you - but I feel like I do by reading your blog. I wish you the very best in your fight with this beast! You are the 1% Bryce! (I am the one who has the son named Bryce - too Cool!)
Love From Virginia!
I haven't prayed so hard for something since my dad was fighting this dreadful disease last year. You two hold on. There's strength in numbers and you've sure got that going for you. I don't know you personally but I wish I did. I feel as if you're my own children and I wish I could be right there with you giving you both a big hug and offering to help with your beautiful baby. I check your blog every day hoping to read good news. Just knowing that you're still fighting, Bryce, is good news indeed. I've told so many people about you and your family and there are many of us here in California praying for that miracle for you. And should you ever run out of babysitters.... :)
Hi Tammy and Bryce-
It was great speaking with you tonight, Tammy. Make sure to tell Bryce to EAT. Give him all the Arby's he wants! You've inspired me to start giving blood again. I used to donate pretty regularly, because I was told my blood type was one of the rarer types. I stopped because I was always one of the people who ended up on the recovery cot... The donation center in my town had a really good layout... On the "recovery cot" I was given a few cookies and a sippy cup, was helped to the cot by three people, and was positioned right next to the waiting area so everyone could stare at me and develop second thoughts about donating themselves. I always wondered if my 1 pint was worth the 3 that they lost by their ingenious cot positioning system. For those of you out there not sure about donating... don't get me wrong... It is NOTHING to be afraid of. Pinch your arm right now. Did that hurt? Well, that's pretty much the extent of the "pain". By going through that, you just saved a life, or you gave someone another day to look forward to. That's worth a pinch, don't you think? If you want to save a life, donate blood! Seriously, it works!
Tammy & Bryce,
I am following your progress every time you post. I am so impressed with your strength and committment to WIN! Bryce, do you remember Luc in your deacon's quorum? He's my son. He has a tumor in his left brachial plexus. He had been stable for over a year (after a year of chemo). When he had his last MRI he thought of you and the strength you are showing (he hates MRIs), it helped him be strong for the scan. He was devastated to hear his tumor had grown 50% in the last 6 months. The night after we found out he said,"Mom, I KNOW I am going to be healed. I'm just scared about the process." I know your example of strength and faith helped prepare him for this turn of events. Thank you. We pray for you every day, many times a day. Keep up the fight!!
Marley
Hi,
Where do we go to give blood. Do you need any specific type?
We read your blog every day. We remember you in our prayers each day. We have loved Bryce and his parents since Bryce was a small boy. We admire your courage.
Love,
Blaine & Peggy
Please let everyone know where the best place to donate blood in Bryce's behalf. We have a large family and
we could all spare a pint or two!!!
We are praying for you all daily and
hope all goes well tomorow, we'll
be cheering from the side lines.
Bryce and Tam- I was so glad to see your update. I have not taken my bracelet off since I got it about a month ago. I think of all three of you every single day.
I was so glad that you posted your families story. My brother had a mole removed a four years ago and it also had melanoma. I sent your story to my whole family so that not only will he be more cautious and proactive but we will all be more educated about our skin. I am making an appointment next week to have some moles checked out. I would have not even thought to do that if you had not been so great about sharing your story and helping us all to understand this disease little better.
We will help you beat this MELASUCKANOMA! I love you guys and I pray for you everyday. Hang in there.
Jenny
Hey Tammy & Bryce!
I was excited that there was an update on the bolg today. Mike and I have been coming to the computer lounge here at out condo in Vegas to check up on you guys. We nomaly don't get down to the computer until after midnight. Tonight Mike sent me by myself. He'll be upset he didn't come. I am so glad to hear how well Bryce is doing. Even though we are here on Vacation in Vegas you are always on our minds. We have included you in our prayers and our friends that are here with us are praying for you too!! Tammy I have to admit I have never donated blood before. I am so scared of needles. Mike has tried so many times to get me to do it and I chicken out everytime. He got me to the Red Cross once but when I started filling out the paperwork I freaked out. BUT for you and Byce I would do anything. I will over come my fear and as soon as I get back I am walking into ARUP and donating blood for Bryce!! We love you guys and we really want to come and visit when we get back! Talk to you soon.
Teri
Tammy,
It is now after 2am and Teri just came back up to our room to let me know that you had updated. I have been thinking of you kids constantly which is better than worrying about work. It is not funny that even when I go on vacation, I still carry my pager and cell phone "just in case".
I am also glad that Dr. Isotope was willing to administer the drugs up there rather than you having to come down to Vegas. You aren't missing anything. We'll have to take some pics of the wristband in Vegas. I don't want to overwhelm you with pictures of people sporting "The Band" but I think it might be kinda cool to show Brycee that people are supporting him all over the nation and possibly beyond. Do I dare suggest that we all send pics? Would it take down your computer? What do you think? Maybe it could be like the traveling knome.
I am glad to hear that the blood transfusions are helping. I always wonder if the blood I donate ever does any good. This gives me hope and more determination to get out again. I talked with Charlie last week about doing another blood drive. I think that dedicating it to Bryce will help get even more people to donate.
I would encourage those reading this blog not to just donate once in honor of Bryce and say that you have done your part. I encourage you to donate as often as possible. And everytime you do, think of Bryce. I think we to often take for granted the things that our bodies can do. Things that other people's bodies might struggle with. Don't want to get on a soap box but you heard the lady, Get out and DONATE!!
Tammy, we miss you guys so much but it is better that I am out of state to help me to resist the urge to come visit. I am sick and wouldn't want to cause problems. I am sure I will be better by the time we get back. We think about you guys constantly. We are praying for you still.
Mikey
I'm so happy you guys are hanging in there!!! I'm praying for you all! You all have such a beautiful family and Tammy, don't laugh, I was looking at your pics of you family, you have the most beautiful teeth!!
You guys are so strong....you are the definition of WARRIORS!!! You keep writing...we'll keep reading and praying!!
Both of you continue to amaze me. I have said it before and I say it again, I am in awe of you and draw immense internal strength from you. Everytime I read a post, I'm reminded of how lucky we all are to live each day. It's something that is so easily taken for granted by so many, but your stories remind me to never take it for granted, to not get hung up on the small things, and to love.
The love you have for each other is fascinating. If more of us loved our husbands and wives the way you two do, this world would be 100 times better. The way you two speak of each other and regard each other, especially in such a trying time is heartwarming and re-affirms my belief that love is real.
Your story about how you met almost brought tears to my eyes. I rememeber those days, as Tammy was always in law school with Holly and me. Those were some good times. I remember the distraught Tammy then, and I see the strong Tammy now. I always knew you were this strong, and I'm so glad you are because your strength moves Bryce, moves your family, and moves your friends. You are amazing.
Bryce, you are defying the odds. I don't know how you're doing it. I don't know how you can deal with the pain, the nausea, the hospital, and the unknown, but you do it. I look to you for strength because I know if you can get through something like this, I can definitely get through being stuck at a red light. :)
Along with your strength, your positive outlook is incredible. I have not once read a "Poor us" or "I'm-so-picked-on" post. You have taken an "I Can" Attitde, ad you'e doing it. You don't whine; you don't mope; you just DO, every day, all day. Again, it reminds me not to complain when my puppy wakes me up at 3:00 a.m. to go outside.
Words cannot express the admiration I have for you two. You are both everyday heroes.
As I've said before, I constantly think of you. I am hoping for a miracle, and you two are working a miracle.
Stay strong. Stay positive.
With love, Loni
Bryce, you are a stronger man than many, and have an awesome woman and child behind you. You might not remember us, but we're from the MF in Fashion Place Mall. We talked to you alot at Bintz. Our thoughts and our prayers are with you daily. Ever since we were informed of your condition, and found out that there was a website, we've been checking it daily. Your wonderful wife Tammy does a terrific job of keeping everyone updated on a daily basis. Stay strong, and keep up the fight! Every added day is a miracle in life.
Susan & Cindy
Bryce, I can't give blood, (they don't like mine), but I am still thinking about you. I keep thinking about you as my 'Nielson's Custard' buddy. I will eat a concrete for you, and hopefully with you next time I am in Bountiful! Keep smiling. Tammy, get him some custard!!!
Love, Gerry
Bryce and Tammy---I was so glad to see the update and to know you are continuing to use this tough time in your lives to strengthen others. I am amazed by your courage and your strength. As promised, I used your suggestion, Tammy, about what all of us can do, in SEFA Synergy to connect with the SEFA Family. Many of them know Bryce personally, along with his family and others at Bintz. I expect you will make a difference in their lives both from thinking about your ideas and from adding the two of you to their prayers. God bless! Tedde
You are doing a great job, girl. Thanks for the updates. Keep up the good work, Tammy. You are truly an inspiration to those of us in the same boat.
I continue to pray daily for Bryce. I hope he has his health restored so that he can continue to be the wonderful daddy and husband that you say he is.
My husband was given the news that his melanoma has come back with a vengeance a week ago (it is now in his CNS), yet he and Bryce sound a lot alike. He is out on the golf course right now. He finished his chemo on Wednesday.
Melanoma sucks!
Take care and hang in there!
Dear Bryce and Tammy, You are both my heroes! I finally found out how to leave comments with Richard's help and he has been bringing up your website for the past couple of weeks - I think Tammy should write a book! I just wanted you to know that you are all in our fervent prayers several times a day and I put your names on the prayer roll. You are working a miracle! If I can be of service (meals, tending, back rubs, etc.) let me know at ???-????. Richard says he will donate blood. Sending lots of love and hugs,
Ann and Richard LeVitre
One of my very worst fears....donating blood. I don't know why I am so afraid of doing something that could mean so much to a person who needs it. I always have some sort of excuse not to. I mean, I have had blood taken for testing and I imagine that it isn't any worse than that. I will work on this and make a goal...I WILL DONATE BLOOD by October 31 (edited by "the moderator"). You have know idea of the big sigh I just made when I typed that. There it is...on paper/computer. I can't back out now. MOMMY!!! Anyhoo...Bryce, Tammy and Dani...we love you all so much and love the great example that you are to us. I know that I have made more of an effort to love my family and outwardly show it. I am not letting the petty things bother me about Jorge, like when he leaves his toothbrush on the counter (hahaha)! There are so many things that are way more important in life!
Much love,
Susie
Hi Bryce,
After I spoke with you yesterday about my friend, Barbara, visiting you today, I called and stopped by a few times and nobody was there. You told me about your MRI. I hope it went well for you. My friend is a cancer survivor and has been in remission for 7 years. She wanted to see you, but it just didn't work out this time. She is going back to California tomorrow. I'll be giving her this blog url so she can read about you. She hasn't been going in every year for her check up, so her doctor called her in. So far, so good. I'll be more vigilant in having her be more vigilant.
Thanks for keeping all of us a little more aware of this disease. It is closer to all of us than we think sometimes.
She had doctors misdiagnose her for years and would have died years ago had she not seeked better medical care. But, I'll let her tell you herself about that sometime.
Keep up the good fight! And I want to say that to Luc also...Marley, I'm thinking of you..
Love,
Barbara
There is a blood drive scheduled in our area this week! The details are:
Thursday, 27 September 2007
Blood Drive 3-8 pm
The LDS Chapel on 2633 South 50 West, Bountiful, Utah
Last time I went at 7:45pm and they had run out of supplies and I got turned away. I hope they learned from last time and are prepared for a big turn out. If you can't do it then, I think your local hospital accepts blood donations.
Call me crazy, I love donating blood! It's so easy and it helps people so much. Plus the armband elbow wrap is so trendy! :)
You guys are inspirational! My husband and I both have since gotten our moles checked out and he got one removed. I also am all about sunscreen. I have been good with putting it on my kids, but not myself. I am now considering the sunscreen odor my new perfume fragrance.
You also inspired me, like Kristi, to start my own family blog. So thanks for inspiring us in our faith, our health, and our families. We love you and pray for you every day!
Hello Bryce, I just got word today about your situation. I want you to know that I am praying for you, all the way from Y-Om-Min....(inside joke)I know how strong you are and I am so impressed with everything I have read. Bryce, keep up the fight. You have so much support.
Tammy, you are unbelievable. This web site is amazing. It makes it possible for people such as me (who live in Y-Om-Min) to stay posted and be in touch. Thank you so much for your hard work and strength. I would like to know if there is anything I can do to help in any way. Tell me about the wrist bands and let me know how I can get them.
Bryce, just to update you on the York Y-Om-Min petting zoo. We now have two dogs, one cute horse, two miniature donkeys, and two baby raccoon's. We have raised them since they were 4 weeks old. We fed them bottles. Now they are in a 10 x 10 playground in our back yard. I spend time with them every day. We are in the process of getting a Miniature horse and her baby. I remember that you like to hear about the animals we are accumulating and then tell Tammy about them and then she would ask you if she can have one. (I remember she loves animals as much as I do)
I will be putting your name in the Ogden Temple. I will be thinking of you and praying for you. Stay strong. Keep the Faith.
Love, Karen
Keep fighting Bryce, it's so great to hear you're a little more energetic. You are the 1%!!! My hopes continue to be with you both.
Jer
Tammy,
Thanks so much for letting Bryce be with the boys. I felt like I was 18 again. It was one story after another for the whole evening. All of us were on the edge of throwing up from laughing so hard. Im sure Bryce will sleep good tonight.
Bryce,
It was great to see you sick from laughter tonight, and it was great to be with everyone again. I think you may have caught a few Z's during some of the funny parts so we'll have to get together again and tell the same stupid stories. Though it's been awhile I still consider you one of my best friends. I love you and pray for you and your family daily.
Aim for the sky and "Shoot the Hawk"!
Keep fighting...as long as you do, life is good. I can't give blood because I contacted malaria in Paraguay. It is A+ anyway so pretty common, but I would like to do something...anything...of course I would like to make it all better, but I am a good prayerer..is that a word. We admire and love you guys. Earlene Blaser
Bryce and Tammy,
What a joy it has been to be your Aunt. Although I live so far away here in Oregon, I have relished each chance I get to see you--you always make me laugh and feel good about myself.
Jim and I love to give blood and try to do it several times a year. It will even be better now cause we will have a personal reason for sharing.
I so appreciate reading this blog. Tams, I haven't talked with you on the phone since that 1st time right at the beginning of this nightmare. I have called the cell and left messages a few times since but have no idea if they have been received. I haven't wanted to bother you but then I read these messages and hear that so many talk with you all the time. I don't have any other number but your cell. I would love to hear your voices...please just don't think I have forgotten you. You permeate my thoughts and prayers.
None of us know how long we have on this earth, but know that you both have left an indelable mark for good on so many lives. I hope that my life will be as purposeful.
I love and miss you both. Bryce, I have offered the Lord my life for yours but I think I have way too much perfection yet to obtain. May every moment of your life be full of love and peace.
Melanie
Good Morning Froggie,
Bryce and Tammy hang in there and keep fighting. Amanda and I are (and have been)praying for you.
Patti (Birdie) Molina
Thanks for the thorough updates Tammy. We eagerly await them in hopes of hearing positive news about Bryce. We pray that Dr. Isotope continues to be inspired and directed beyond his vast medical training and expertise. The dreaded 'C' word has met it's match when competeing with the stubborn and determined character of Bryce. We both want to join in on the blood drive and will ask our boys to empty a pint or two. Please let us know when and where. Your Mother and Father (on both sides) are an inspiration to the neighborhood, always showing optimism with a constant 'thumbs up' attitude. We are anxious to hear the results of the MRI. Bryce, stay tough and together we'll kick butt!!!
Our family will donate blood.....Let us know where and how.....Thanks, Tammy for your time and energy in keeping us up to date on Bryce.
Charlene
Hi Bryce,
It has been such a long time since I've seen you. I did manage to get a hug from you last December at Paradise Bakery. But before then, it had probably been 10 or more years since the last time I saw you. I was so thankful Cindy told me about your website. I've been checking in often to see how you are doing. I've never met your wife, but she sounds incredible. You are so lucky to have her! Bryce, I've known you most of my life. I think we started Kindergarten together. I have always considered you a very dear friend. You and your sweet family are in my thoughts and prayers. Take care of yourself.
All my love,
Sally
I'm not much of a writer but all you need to know is that I love you guys and pray for you all the time. Lately my blood has been no good but I'll keep trying as often as I can. The Lord is defenitely hearing the prayers of the multitude in your behalf Bryce, that,I believe, is why you're "beating the odds". Thanks for keeping us all informed and motivated in doing the right things personally and for our loved ones. Give all your family hugs from me. Love Aunt Wendy
Tammy & Bryce:
Still believing God for a miracle!!
Know you both are lifted up daily in prayer.
In His Love,
Kelli
Stroudsburg, PA
My husband and I are following your story and continue to be inspired by your posts, helping to keep our lives and priorities in perspective. I have mentioned your situation on my blog, I hope that's ok! I'm still praying for your family :)
---Amy (Tammy's second cousin)
Bryce,
We missed you at the Golf Tournament, Your brother did great on the 15,000 dollar hole in one, just not great enough, ha ha ha. We think about you all the time, I check the blog everyday and appreciate so much Tammy keeping everyone in the loop of your health. Many many prayers to you Bryce. May God's love, peace and healing be yours.
Laura
Bryce
My new name for you is iron man.Keep fighting!! I am so proud that you have not lost faith it is so hard to keep fighting something so powerful.I admire your courage and strenght.As you know we have had our moments on who is the toughest!!! I now know from here on out not to cross the line with you.Tammy thank you so much for all the updates you are amazing.I am happy to hear you are getting a little more sleep.I think and pray for you all everyday miracales do happen Bryce has already proved that. The plaster of your hands is amazing something to cherish forever!
Susan w
For all of you who are wanting information on donating blood and waiting to hear when and where from Tammy, you don't need to wait for her--call your local American Red Cross or hospital to find out how and when to donate. It only takes a few minutes to look online and get the phone numbers, or to see when a blood drive will be in your area.
Tammy and Bryce, you have so much love and support coming your way. Know that you are dearly loved by all who are near and far. I wish I could be closer to you, but for now, one state away will have to do. I've added several of your new friends to my list of people I pray for (Christine U., Brian and Tara, Mike and Liz, Keith and Suzan), and these are the ones I remember most from reading their blogs. I love you so much, so keep fighting.
Aunt Elaine
PS: I want to meet Earlene Blaser because she's been to Paraguay. I love Paraguay!!
Hi Tammy and Bryce! Your story is helping to make all of us better people. You've absolutely convinced me to cover up more in the sun; sunscreen and a long shirt for me! We're going to try and have a blood drive here at Arapeen Drive, hopefully other companies will come out. Unfortunately, I won't be able to donate because I'm expecting my first baby! Anxious and excited all at once. We all can't wait to see you in the office again, we miss your exuberant spirit and smile.
(Added by Tammy: CONGRATULATIONS, Emily! I'm grinning from ear to ear!)
Oh Bryce.... You are such a "Brave Litte Nugget". Tammy, you might get a smile from Bryce with that phrase. "Nugget" was a High School tidbit that I still get teased about saying. Kinda like calling someone a dork.....It was so good to see pictures of John and Bryce together...Just like old times!!! Tammy, you are amazing!! Thank you for taking the time to let friends share their thought with you and Bryce. I write this with tears in my eyes and a heavy heart...Our Heavenly Father loves you Bryce and your family, feel of his love and peace during this journey. You are in everyones thoughts and prayers.
Love, Tracie Terrill
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I just wanted to drop a quick note to say thanks for bringing the significance of melanoma to light for me. As a result of your story I made an appointment with the dermatologist that resulted in having 2 pre-cancerous growths zapped with liquid nitrogen and 3 suspicious moles put on the watch list. The cancer killing power of the Brown family extends beyond your house and into the blogosphere!
It would be cool to hear if others have taken action?